Enhancing Knowledge of Family Caregivers and Quality of Life of Patients with Ischemic Stroke

Authors

  • Muhammad Ayaz The University of Lahore, Lahore School of Nursing, Lahore
  • Hajra Sarwar
  • Adnan Yaqoob
  • Mumtaz Ali Khan

DOI:

https://doi.org/10.36552/pjns.v25i4.625

Keywords:

Stroke, informal caregivers, quality of life

Abstract

Objectives:  A Quasi-Experimental study was conducted to determine the impact of Attend-trial-based interventions on the knowledge of the caregivers and the quality of life of Ischemic stroke survivors.

Material and Methods:  The study was conducted in the acute care hospital located in the rural area, Khyber Pukhtoonkha. A sample of 115 patients and informal caregivers participated in a multifaceted intervention including educational sessions, training and demonstration, and post-training discussion via WhatsApp. A pre-post evaluation of the quality of life, stroke knowledge, functioning, and activities of daily living was completed using validated tools. All information was collected using predesign pro forma and questionnaire.

Results:  The interventions significantly improved all four outcomes in caregivers and patients. The mean score for the WHOQOL-BREF pre-intervention was 2.91 ± 1.10 which was increased to 4.18 ± 0.86. The pre-knowledge scores were 34.00 which increased to 39.95. There was a statistically significant change between pre and post knowledge scores [t (114) = -3.394, p = 0.001].

Conclusion:  The study contributed towards the usefulness of multifaceted education intervention to enhance the rehabilitation efforts of patients and their caregivers in community settings.

References

Murray CJ, Aravkin AY, Zheng P, Abbafati C, Abbas KM, Abbasi-Kangevari M, et al. Global burden of 87 risk factors in 204 countries and territories, 1990–2019: a systematic analysis for the Global Burden of Disease Study, 2019. 2020; 396 (10258): 1223-49.

Feigin VL, Stark BA, Johnson CO, Roth GA, Bisignano C, Abady GG, et al. Global, regional, and national burden of stroke and its risk factors, 1990 – 2019: a systematic analysis for the Global Burden of Disease Study, 2019. 2021; 20 (10): 795-820.

Worldometers.info. Southern Asia Population, 2021. [Available from:

https://www.worldometers.info/world-population/southern-asia-population/.

Chen Z, Jiang B, Ru X, Sun H, Sun D, Liu X, et al. Mortality of stroke and its subtypes in China: results from a nationwide population-based survey, 2017; 48 (3-4): 95-102.

Review WP. Pakistan Population 2021 (Live) 2021 [Available from:

https://worldpopulationreview.com/countries/pakistan-population.

Hashmi M, Khan M, Wasay MJIjos. Growing burden of stroke in Pakistan: a review of progress and limitations, 2013; 8 (7): 575-81.

Nomani AZ, Nabi S, Badshah M, Ahmed SJS, neurology v. Review of acute ischaemic stroke in Pakistan: progress in management and future perspectives, 2017; 2 (1).

Haley WE, Roth DL, Hovater M, Clay OJJN. Long-term impact of stroke on family caregiver well-being: a population – based case – control study, 2015; 84 (13): 1323-9.

Ganjiwale D, Ganjiwale J, Parikh SJJofm, care p. Association of quality of life of carers with quality of life and functional independence of stroke survivors, 2016; 5 (1): 129.

Pont W, Groeneveld I, Arwert H, Meesters J, Mishre RR, Vliet Vlieland T, et al. Caregiver burden after stroke: changes over time? 2020; 42 (3): 360-7.

Kamal AK, Itrat A, Murtaza M, Khan M, Rasheed A, Ali A, et al. The burden of stroke and transient ischemic attack in Pakistan: a community-based prevalence study, 2009; 9 (1): 1-11.

Yang L, Zhao Q, Zhu X, Shen X, Zhu Y, Yang L, et al.

Effect of a comprehensive health education program on pre-hospital delay intentions in high-risk stroke population and caregivers, 2017; 26 (8): 2153-60.

Pitthayapong S, Thiangtam W, Powwattana A, Leelacharas S, Waters CMJANR. A community based program for family caregivers for post stroke survivors in Thailand, 2017; 11 (2): 150-7.

Ekechukwu END, Olowoyo P, Nwankwo KO, Olaleye OA, Ogbodo VE, Hamzat TK, et al. Pragmatic solutions for stroke recovery and improved quality of life in low-and middle-income countries — a systematic review, 2020; 11: 337.

Sulter G, Steen C, De Keyser JJS. Use of the Barthel index and modified Rankin scale in acute stroke trials, 1999; 30 (8): 1538-41.

Sullivan K, Dunton NJJTisr. Development and validation of the stroke knowledge test, 2004; 11 (3): 19-28.

Lodhi FS, Raza O, Montazeri A, Nedjat S, Yaseri M, Holakouie – Naieni Kjmjoti RoI. Psychometric properties of the Urdu version of the World Health Organization's quality of life questionnaire (WHOQOL – BREF), 2017; 31: 129.

Butsing N, Tipayamongkholgul M, Ratanakorn D, Suwannapong N, Bundhamcharoen KJJoPRP. Social support, functional outcome and quality of life among stroke survivors in an urban area, 2019; 13.

Donkor ESJSr, treatment. Stroke in the century: a snapshot of the burden, epidemiology, and quality of life, 2018; 2018.

Alegiani AC, Albrecht S, Rahn AC, Köpke S, Thomalla G, Heesen CJPp, et al. Reasons for delayed admission after stroke: results of a qualitative and quantitative survey, 2019; 13: 739.

Organization WH. Task shifting: rational redistribution of tasks among health workforce teams: global recommendations and guidelines, 2007.

Johnston SC, Fayad PB, Gorelick P, Hanley D, Shwayder P, Van Husen D, et al. Prevalence and knowledge of transient ischemic attack among US adults, 2003; 60 (9): 1429-34.

Kamran S, Bener A, Deleu D, Khoja W, Jumma M, Al-Shubali A, et al. The level of awareness of stroke risk factors and symptoms in the Gulf Cooperation Council countries: Gulf Cooperation Council stroke awareness study, 2007; 29 (3-4): 235-42.

Farooq MU, Bhatt A, Safdar A, Kassab MY, Majid AJIJoS. Stroke symptoms and risk factor awareness in high school children in Pakistan, 2012; 7 (8): E15-E.

White CL, Cantu AG, Trevino MMJCNS. Interventions for caregivers of stroke survivors: An update of the evidence, 2015; 3 (3): 87-95.

Yan LL, Li C, Chen J, Miranda JJ, Luo R, Bettger J,

et al. Prevention, management, and rehabilitation of stroke in low-and middle-income countries, 2016; 2: 21-30.

Musa KI, Keegan TJJPo. The change of Barthel Index scores from the time of discharge until 3-month post-discharge among acute stroke patients in Malaysia: A random intercept model, 2018; 13 (12): e0208594.

Kong K-H, Lee JJN. Temporal recovery of activities of daily living in the first year after ischemic stroke: a prospective study of patients admitted to a rehabilitation unit, 2014; 35 (2): 221-6.

Lee KB, Lim SH, Kim KH, Kim KJ, Kim YR, Chang WN, et al. Six-month functional recovery of stroke patients: a multi-time-point study, 2015; 38 (2): 173.

Khalid W, Rozi S, Ali TS, Azam I, Mullen MT, Illyas S, et al. Quality of life after stroke in Pakistan, 2016; 16 (1): 1-12.

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Published

2022-02-01

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Original Articles